Monday, September 28, 2009

Buddy Walk October 3rd

The Buddy Walk is less than a week away, and we are all getting very excited. So far our team, Ben's Brigade, has 21 walkers and has raised just over $700 for the Down syndrome Association for Familes of Nebraska. We are so blessed to have such great support from our family and friends.
There is still time to donate and/or register. Go to for more details.
We also paid for a registration for Elmwood Murdock School, so students, teachers and thier families can come walk with us too. We need to have a total count in by September 30th, so if you can join us on October 3rd, please call me or the office at school to get signed up. Don't for get to wear your Knights attire!
We will meet at Antelope Park (near 30th and A) just east of the barrier free playground between 8:00 and 9:30. Look for Ben's stroller with a Ben's Brigade flag flying from it. There will be lots of fun activites for the kids, food, plus a teriffic raffle . The walk starts at 9:30. After the walk you will get a sticker that will get you in to the Children's Museum free for the rest of the day.
So far the it sounds like the weather will cooperate and it will be a beautiful day. We hope you can join us!
Thanks for all your support.

Thursday, September 17, 2009

18 months old!

Ben is 18 months old today.
It is hard to believe that time goes so quickly. At first we were worried about Ben being behind and all the things he might not be able to do. But now I don’t worry so much. Ben is learning - just at his own pace. Can he do everything his peers can? Well no. But there are plenty of things he can do. Here are a few.

-Can crawl anywhere he wants to, and crawl fast if you are coming after him.

-Eats like a horse.

-Is drinking soy milk from a cup with a straw and is doing pretty good.

-Loves his thumb.

-Sleeps great.

-Loves to take a bath and play in the water.

-Cruises along the sofa, table and any other surface he can pull up on.

-Likes to pull up on the door or window.

-Loves to horse around with his big brothers.

-Signs all done, bath, more, and out.

-Waves hi and bye.

-Gives kisses (watch out for that tongue!)

-Loves to sway and dance to music.

-Likes to turn on the music on his crib toy, even if it is 4:00 in the morning.

-Communicates very clearly that if you have food you will be sharing some with him.

-Loves to have books read to him.

-Throws them on the floor when you say "the end".

-Can not stand to have his blocks, books or toys put away neatly in their containers.

-Throws his toys over his shoulder when he is done with them.

-Throws his cup and spoon over the edge of the high chair after every drink or bite.

-Sees himself in the mirror and says "Ba".

-Can reach things on the dining room table, that I thought for sure were out of his reach.

-Is very curious about his surroundings and likes to explore.

-Loves to clap for himself and for others.

-Has the most precious little belly laugh.

-Is a total flirt.

-Can melt your heart with his smile.

-Has been an inspiration to our whole family.

Monday, September 14, 2009

Capital City Buddy Walk

This is Ben .
It's time again to raise money for the Down Syndrome Awareness in Lincoln.
How can you help? Many different ways! You can donate on-line by going to Ben's Brigade team page by clicking here. You can donate by check made payable to DSAF of Nebraska and send it to The Willey Family (email me @ if you need the address). But the best way to show your support, is to register and come walk with us! Our team name is Ben’s Brigade. My family would love to see you there! To register, click here. Be sure to register by September 20th to get a free T-shirt with your paid registration!

The walk is 1 mile around the Children’s Zoo but there will be so much more than just the walk! I know they have a lot of fun stuff planned for the kids! Click here to see the brochure.

Thanks for reading. Thanks for donating. Thanks for loving me for me!
Randy, Angie, John and Noah Willey

Wednesday, September 2, 2009

Hand, Foot and Mouth

Last week Ben crawled into the bathroom and just as I rounded the corner to get him, he fell into the tub. He did not hit hard, and cried just a little, but soon after I noticed a red spot on his tongue. I figured he bit his tongue, since it is usually sticking out anyway, and did not think much of it after that.

The next day, Alyce and I were laying tile on the kitchen counters, and needed to make an unexpected trip to Lincoln for more supplies. (That is a whole other story, but I will not tell it here.) While at the store I noticed what looked like a small white head in the spot on Ben's tongue where the red mark had been. Along with it were lots more little white heads on the front of his tongue, along with a few more toward the back of his tongue.

Time to call the Dr.

While it was hard to diagnose over the phone, they suggested it must be hand, foot and mouth, or a similar virus. Either way, they don't treat it so we were to just watch it closely and give meds for pain as needed.

At the time he was just slightly whiny and clingy, so I did not worry much.

Boy did that change over the weekend. Those sores in his mouth must have really hurt. He stopped nursing and drinking, did not want to eat anything he had to chew, and just sat and cried for 5 -10 minutes at a time, especially when his pain meds wore off. My happy go lucky baby was gone.

Looking back, it really did not last long and he is now back to his happy self, but I was worried quite a few times that something major was wrong, by the way he carrying on.

Luckily I already had the week off of work for vacation, and we were able to get the counter tops done in spite of the clingy baby. Thank goodness for the backpack carrier.

School started on Monday in our beautifully newly remodeled school. So far I think both older boys are enjoying it.