Tuesday, April 23, 2013

Not What I Expected!

Usually we keep the fridge locked.  Ben loves to get in an pick out something to eat.  Yesterday he dumped a pie on the floor. But every now and then he gets out an appropriate snack (usually yogurt or a pepper). 

Today when I heard him in the fridge, I let him go to see what he would get.  After I heard him in the silverware drawer, I was sure he was getting himself spoon to eat his yogurt with and went in to help take the top off.

But when I got to the kitchen, he had his spoon poised over..............
The tub of margarine.  Yuck!  

I am not sure why but he has been trying to eat the margarine a lot lately and must have decided he does not get enough when he just sticks his hand in it and needed a spoon, so he could get a nice big bite.

Unfortunately because of Ben, my margarine now looks like this:

Does this mean he is deficient in something that would make him crave this nasty stuff?  Or maybe he just likes the smooth texture?  Going to have to makes sure the fridge lock is in place and the margarine is on the top shelf until this phase passes!  Hopefully it passes quickly!

Monday, April 8, 2013

How Do You Respond?

A while back I went to the Dr. to get a check up.  She asked how I was sleeping.  I told her that I was sleeping fine, but I have lots of external factors that often prevent me from sleeping all night.  One of those factors is Ben.  He had some issues with his ears, and is a newly trained potty user, who can't always hold it all night, and still wants Mom there with him in the dark when he has to go.
She replied "I think it is great that you are working on potty training with  him.  I have a friend who is a para at a school and works with a second grader with Down syndrome who is not potty trained, and she says she spends most of the day working on toileting when they should be working on learning.  They (meaning kids with Down syndrome)  are completely trainable."  I just looked at her for a second (as if she was nuts) and replied "Why wouldn't we potty train him?"

When someone says something that bothers me, I always try to figure out where they were coming from.  I know she was trying to encourage me that getting up every night to help Ben use the potty, will have great long term benefits for Ben and for us, but really?  More alike than different people.  I have tried to let it go, but am having a hard time.  It really makes me sad for the family of the 2nd grader.  I don't know who it is, but I am sure they have been trying very hard to train their child, but that it just has not clicked with the child yet.  Each child, learns at the their own pace. Ben may have been reading sight words as age 2, but he did not really get potty training until he was almost 5.  Other kids with Down syndrome might potty train at 2 or 3, but may not sight read words until they are 5 or 6.  Each child is an individual, with their own strength, weaknesses, and learning time tables.

I guess I am holding up the doctor to a higher standard that I would do for others.  When Ben was younger I had a relative ask if he would be able to be potty trained.  She, like the rest of our family, did not know much about Down syndrome until Ben came along and was just looking for information.  I told her yes and gave her some statistics to help her learn.  But when dealing with doctors, we feel like they should already know, some of these answers.  I want to spread positive awareness, so I need to remember that even with doctors, there are teachable moments, and be prepared to educate and not take offense.  

Tuesday, April 2, 2013

Lovin' Those Stripes.

Ben showed me the other day, that not only is he completely capable of getting dressed all by him self, he also a distinct sense of style.  The boy loves stripes.  

I guess I need to go shopping to get him new clothes.
Heavy on the stripes.