Showing posts with label Down Syndrome Nebraska. Show all posts
Showing posts with label Down Syndrome Nebraska. Show all posts

Thursday, April 11, 2019

Lincoln Star City Buddy Walk!

Thank you to Down Syndrome Advocates in Action for supporting all families who have a loved one with Down syndrome in Nebraska.  Thank you also to all the wonderful volunteers for helping make the event such a success.  This is the first year I got to actually walk at the walk and was thankful to have volunteer photographers to help us capture the day.  Each year the Buddy Walk has doubled in size and we are grateful for everyone who comes out to support the local Down syndrome community so that we can make sure there are no families left behind.  
Thank you also to Shauna and Deb for helping to make this event possible!  Every individual with Down syndrome deserves to be celebrated and everyone is welcome at DSAA NE! 


Thank you to all our friends and family who helped Ben's Brigade earn 3rd place in fundraising! Thank you also to everyone who purchased necklaces, earring, or EM Sports photos.  Ben was so proud of the medal he received.  


Monday, February 15, 2016

World Down Syndrome Day Awareness Walk

Our new group, Down Syndrome Advocates in Action Nebraska is hosting a mall walk for to raise awareness for the upcoming World Down Syndrome Day. #wdsd16
Ben's Brigade will be there and invites you to join us on March 19, 2016 at Gateway Mall in Lincoln NE between 9:30 and noon and walk laps in the mall.  In order to qualify for the raffle you need to wear a shirt or button that promotes Down syndrome awareness.  Register for the event here.

You can wear a shirt or button you already have or wear a new World Down Syndrome day long or short sleeved shirt or button.  The deadline for pre-orders has passed, but a few extra short sleeve shirts of each size were ordered.  Email bensbrigadene@gmail.com to see if your size shirt is still in stock.   Buttons can be ordered until March 12, 2016 .  Proceeds from the sale of these items go to DSAA Nebraska.
$14
$17

We also have a few Ben'x Brigade shirts available too.  These short sleeve shirts are $10 each.  Contact me to see if I have any left in your size.

$10

We hope you can join us, but even if you can't, we hope you can celebrate World Down Syndrome Day on March 21, 2016 where ever you are. #WDSD2016 
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Tuesday, April 23, 2013

Not What I Expected!

Usually we keep the fridge locked.  Ben loves to get in an pick out something to eat.  Yesterday he dumped a pie on the floor. But every now and then he gets out an appropriate snack (usually yogurt or a pepper). 

Today when I heard him in the fridge, I let him go to see what he would get.  After I heard him in the silverware drawer, I was sure he was getting himself spoon to eat his yogurt with and went in to help take the top off.

But when I got to the kitchen, he had his spoon poised over..............
 
The tub of margarine.  Yuck!  

I am not sure why but he has been trying to eat the margarine a lot lately and must have decided he does not get enough when he just sticks his hand in it and needed a spoon, so he could get a nice big bite.

Unfortunately because of Ben, my margarine now looks like this:



Does this mean he is deficient in something that would make him crave this nasty stuff?  Or maybe he just likes the smooth texture?  Going to have to makes sure the fridge lock is in place and the margarine is on the top shelf until this phase passes!  Hopefully it passes quickly!