This summer the alarm is set for 5:45 AM. Not by choice. I am not a morning person in any way. I enjoy sleep.
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Saturday, July 2, 2022
The Speed of Inclusion
This summer the alarm is set for 5:45 AM. Not by choice. I am not a morning person in any way. I enjoy sleep.
Wednesday, June 29, 2022
I often have people ask what things we use to help us get Ben to school on time and to help him to be as independent as possible. Here is a must have item for our loved one with Down syndrome to help him navigate his day at school.
First off the entire process of getting ready for school is a challenge. We use quite a few items to help us along the way. The first thing we use are lots of alarms. The alarms tell Ben when it is time to do something, not me. This helps to avoid a power struggle. Sometimes on days when I can tell he is especially having a hard time focusing and getting ready for school, I will get out the count down timer. The visual helps him know that time is ticking down. The bad part is that he knows how to give himself more time.
Secura 60-Minute Visual Countdown Timer, 7.5-Inch Oversize Classroom Visual Timer for Kids and Adults, Durable Mechanical Kitchen Timer Clock with Magnetic Backing (Red) https://a.co/4zY76Nt
The last thing before getting out the door is always shoes. We have tried a couple of other no tie options, but this one is Ben's favorite. It looks similar to real laces, if you don’t look to closely.
HOMAR No Tie Shoelaces for Kids and Adults Stretch Silicone Elastic No Tie Shoe Laces https://a.co/fLD79lb
Monday, January 6, 2020
Basketball Season, Inclusion and More
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But it has been a lot of work getting here. Sometimes when we get to practice, he is ready to go and he cooperates and listens so he can learn with his teammates. Other times hes is not. This last practice we were late getting to the gym, and just missed out on the team running laps - something he adamantly refuses to do anyway. But somehow that messed up his entire practice. His amazing Coach kept trying to encourage him to engage, but for some reason he refused and just dribbled on the sideline or shot toward the wall. Finally about half way through he jumped in and did pretty good from there on out. But it is not always easy. It made me wonder what it is like for him at school when he arrives in a classroom after the rest of his classmates. Does he have trouble engaging? I know they purposely have him go in late for band. Is this helping or causing more problems?
Sometimes seeing him in other settings gives me light bulb ideas on why things are occurring at school. A similar thing happened this summer at Harrison Phillips #playmakers football camp. (which by the way was beyond amazing) Ben would not engage with the other kids but would only sit and watch, and only when they left would he get up and try the activity himself. Was doing it with the other kids around too stressful? I don't think so. I have seen him play basketball in front of an entire crowd of people. He loves being cheered on. Or, more likely, is that what was happens to him at school? Does he only get to try things only after all the other kids are done? I don't know for sure, but I put my money on the latter.
Basketball is his happy place. The gym is not doubt, thanks to fantastic and patient coaches, the most inclusive place in his life. We are so grateful to everyone who has helped him get to where he is today. I asked him the other day who his favorite basketball player was -thinking he would say his older brother. Without a beat he said Coach Dan. You know what Ben? He is one of my favorites too!
Monday, July 22, 2019
Put me in Coach!
Thursday, April 11, 2019
The Lucky Few Buddy Walk, DSAA Kearney
The event was held at the old Kearney High School which is now First Baptist Church. It was a wonderful place for the event and the gym was spacious enough to hold everyone comfortably.
We enjoyed the music, photo booth, cotton candy, and yummy food. Ben enjoyed the gluten free pizza that we picked up from Flippin Sweet on the way there. It was fun to go to an event and be able to enjoy the party! Thank you Suzanne, Kiffany, Beth and Lindsay.